I tried to go to bed at a reasonable hour tonight.
My kids didn’t get bedtime stories read to them this evening
because I was half-asleep on the couch at 7:30. Micah was at the kitchen table
practicing writing three digit numbers and Isaiah was sitting on my head
reading Harry Potter. Yup, you read
that right. He was so determined to get to find out if anyone was going to show
up in the Hog’s Head to learn Defense Against the Dark Arts from Harry that he
perched himself right atop the pillow I was sleeping on and started to read to
himself. I woke up to an exclamation of “Expecto Patronum!” and tried to sit
up, but my hair was trapped under his butt. To his credit, he did feel bad
about that.
Once they were actually in bed, I went to the kitchen to
grab a bowl of carbs and cut of a ginormous hunk of a caramel apple covered in Reece’s
Pieces. Computer open and Friday Night
Lights rolling on Netflix, it was time to work.
Except I couldn’t think. I tried to write and nothing could
materialize. I tried to edit a piece for the website, but I couldn’t remember
how commas work. Mostly, I just sat there and got fatter while I tried to
decide if I wanted Tami Taylor to be my BFF or if I actually hated her because
she is so skinny and has perfect hair.
You see, today was hard.
Even though yesterday was the day Evan was supposed to come
home only to discover his kidneys were once again threatening to quit on him,
today was harder. Today was our staff Christmas party at the church where I
work. One of the other assistants made Jib Jab videos with the faces of every
single person on staff, there was a hot chocolate bar complete with raspberry
whipped cream, marshmallows and sprinkles. There were carolers.
So many people with good intentions and servant hearts came
to ask how Evan was doing. And I told them. Then they asked how I was doing.
And I lied to them.
I lied.
I lied to my friends. I lied to my senior pastor.
I said things like, “I’m getting through” and “Well, I’m
here!” and “We’re doing okay.”
Perhaps those things aren’t total lies because I guess there
certainly is some truth to them. We are getting through, I have been showing up
to work, and for the most part we really are okay.
But my senior pastor asked me a question that I hadn’t
really considered much.
“Are you sleeping?” he asked.
To be honest, I’m not even sure what kind of jacked-up
answer I gave him, but I know whatever speech I gave, it was delivered in kind
of a HEY LOOK SOMETHING SHINY fashion that is meant to distract the listener.
So here’s the truth.
Yes, I am sleeping. But I’m not getting rest.
Nothing is restful anymore. Every spare moment feels like it
should be spent either working or writing the dozens of thank you notes I am
behind on. I feel guilty even claiming to have “spare moments” because there
are laundry baskets all over the house filled with clothes that someone else
has folded that I haven’t even been able to muster the motivation to put away.
My desk is covered with medical supplies, so my office now
makes me think of the hospital. The place where he is. The disease that started
this mess. So that space that Evan was so insistent be just MINE? The place
where I was supposed to be able to shut the door and just get away? Now that’s
gone too, taken over by gauze, medications and a blood pressure cuff.
I let the auto-play feature of Netflix take over until it
asks if I’m still alive – Are you STILL
watching Gilmore Girls? – and then I realize it’s nearly midnight. I try to
write an email, schedule some tweets, do something resembling anything
productive to at least trick myself into believing I’m getting through this
even half as well as everyone thinks I am, but instead I stare at the blinking
cursor and wonder what I’m going to watch tomorrow night because we’ve reached
the point in the series where Lorelai and Rory are apart and fighting because
Rory quit Yale and moved in with her grandparents and they don’t speak to one
another for like eight episodes which is the absolute worst.
I just don’t have the emotional capacity right now to handle
the Great Gilmore Estrangement of 2005.
Too close for missiles, switching to guns. Back to Friday Night Lights. I really need someone to give me their Hulu+ password so I can watch the final season of Parenthood. On second thought, I heard that I am going to cry ugly tears at the finale, so maybe it's best that I wait and try something a bit less traumatic like The Walking Dead.
Too close for missiles, switching to guns. Back to Friday Night Lights. I really need someone to give me their Hulu+ password so I can watch the final season of Parenthood. On second thought, I heard that I am going to cry ugly tears at the finale, so maybe it's best that I wait and try something a bit less traumatic like The Walking Dead.
So when I finally fall into bed, I lay there and my mind
just spins with all the things I should have done that I didn’t. All the
worries about Evan, the fear, the guilt. All the prayers for God to fix this.
All the tears because I’m so damn lonely and so damn tired.
Eventually sleep comes. But not rest.
The boys have to nearly drag me out of bed in the morning. I
have an entire closet of clothes that don’t fit because I’ve gained so much
weight in the last several weeks. Even my yoga pants are threatening to give out,
so that’s saying something.
I get my game face on. I get the kids to school. I go to
work.
I do the best I can, but I am exhausted.
Emotionally, physically, spiritually.
Spent.
Even as I write these words, I am wrestling with guilt.
Guilt that I am taking the time to write instead of trying to sleep. Guilt for
even feeling like anyone will care about any of this.
There are people with real problems, the voice whispers. Cancer treatments, deaths in the family, disasters that are way bigger and way more important that anything you could understand. You are being selfish and whiny and you have become nothing but a burden. Your family needs you to be strong and instead you are failing and are relying on everyone else to do everything. How pathetic. Be a grown-up and get over yourself.
There are people with real problems, the voice whispers. Cancer treatments, deaths in the family, disasters that are way bigger and way more important that anything you could understand. You are being selfish and whiny and you have become nothing but a burden. Your family needs you to be strong and instead you are failing and are relying on everyone else to do everything. How pathetic. Be a grown-up and get over yourself.
I’ve never claimed to have been strong against this kind of
attack. But right now, my defenses are weaker than they have ever been and I
can feel myself started to break.
So I sleep. I don’t rest.
